201807/01Sun

始めます!\Caregivers カフェこがねい/のご案内。

2018年7月12日(木)10:30~

ケアラーズカフェこがねい”名称を改め “Caregivers カフェこがねい”と変更になり、
        “プチ常設カフェ”に生まれ変わります!

名称: “Caregivers カフェこがねい” (介護者のカフェこがねい)

営業日:木曜日・金曜日・土曜日(第2週・第3週)※第3木曜日のみ貫井北町カフェ実施の為お休みです。
木曜日・金曜日・土曜日・日曜日(第4週)
定休日:第1週・第5週 第3木曜日
時間:10:30-14:00
場所:フロンティア 小金井市本町1-9-8 2F
参加費:500円 ※スタッフ・サポーター・利用者みんなで出資します!

詳細終日介護者のカフェ・午後から介護のカテゴリーに合わせたサロンを実施(参加自由)。
木曜日:12:00-14:00 \New!若年性認知症家族サロン/
金曜日:12:00-14:00 がんの家族サロン
土曜日:12:00-14:00 認知症の家族サロン
第4日曜日:兄弟姉妹ケアラーズカフェ10:30-14:00※現行通り変更なしです。

今回、“プチ”常設が可能になりました経緯には、大変沢山の皆さんのご協力を頂ました。
特に、JR中央線武蔵小金井駅前、徒歩1分と言う好立地な場所を提供を下さいました、
“喫茶フロンティア”、オーナーご夫婦には、この場にて、深く感謝と御礼を申し上げます。
オーナーご夫婦は、1年間営業日が、364日と言う、年に1度しかお休みをされないと言う、
徹底した姿勢の仕事をされています。
UPTREEとして、オーナーご夫婦の仕事の姿勢、実績にに少しでも近づける様、常設カフェを目指し、
継続していきたいと思います。
日数が少しが増えた事で、全国の家族介護をしている皆さんの居場所となれましたら幸いです!

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201806/22Fri

第2回 家族介護事前 教育 “条例” 骨子(案)検討会を開催しました!

2018年6月20日(水)19:00-21:00

第2回 家族介護事前 教育 “条例” 骨子(案)検討会を開催しました!
今回も沢山の多様な職種の皆さんにご参加を頂きまして、感謝申し上げます。

この“家族介護の教育条例“検討会は、そもそも早期に、“知る機会“を作ると言うシンプルな考えです。
誰もが経験するであろう、介護環境は、当事者(介護者)にならない限り知る機会がないと言う現実
又は、障がいを持つ家族(介護者)の当事者だけでは解決の出来ない環境を、教育と言う視点から知り、
理解をする機会を作り、介護する家族がだけで抱える事ではなく、地域で理解し当たり前の生活が出来る様にしたいと言う思いです。

この検討会は、2年間と言う時間をかけ、2020年に小金井市から“家族介護の教育”における条例の制定を
目標にしています。
2018年、今年度は、介護の現状を介護の多様な職種の現状と課題と未来を知る時間を設けています。
第2回は、介護事業者の現状と課題と未来を共有しました。
居宅介護事業所の課題として、介護保険制度における「介護職員処遇改善加算」の問題、「総合支援事業」の問題等の課題を聞く事が出来ました。
また、「障がい者の就労支援B型」、「グループホームの設立」における地域との関わりの重要な課題を共有する事が出来ました。
障がいを持つ家族の親は、子供の為に人生をかけ、環境を整え、“社会の仕組みに合わせる事”に苦労をしています。
現在の社会の仕組みの問題は、健常者の仕組みの中に、障がい者の仕組みがある様に私は思います。
特に、教育においては、特別な扱いをしていると私は感じています。
状況的に、仕組みを特別にしなくてはならない状況もあります。ですが、全てを特別、別にする事は無いのではないかと私は考えます。
“知る機会“があり、その状況を考え、行動する事が出来る子供の教育環境 “選択肢“ が必要だと私は思います。
私の、小学生の時代、学校教育で“典子は、今”と言う、重症の四肢の欠損症のドキュメント映画の鑑賞がありました。
それは私にとって、衝撃的に記憶に残る経験をしました。
当時の教育では、障がいのある人に、優しくと言う、教育であった様に記憶しています。
私は、映画を観て、“かわいそう“と言う感情しかありませんでした。
その感情は長い時間、大人になるまでに持っていたものです。
今では、その感情に違和感を感じています。
そう考えられる様になった事は、情報と知識を得られた時間の経過でもあります。
当時の教育を否定する事ではありませんが、
もう1つ、考える事の出来る選択を与えて欲しかったと思います。
社会が、障がいのある人にとっての苦労を見せるだけでは無く、その障がい者の社会からの環境、情報、
知識等見れる事です。

教育現場だけが絶対ではないと言う事、“家庭教育環境の重要な事”、現在、各家族になり、
生・死が身近に無い事は、大事な家族との関係をどう対応対処すべきか、誰に相談するのか、
出来るのか、色々な方法を制度仕組みが必要になっていると思います。

制度、教育、家族だけで解決の出来ない問題を、“地域を巻き込み考える時間”を作る事が、
未来の子供に今、出来る事ではないかと思います。
いつも、私の思いを応援し、形にする事を応援し協力てくれるUPTREEサポーターの皆さん、
STAFF、今回参画して下さいました、皆さまに感謝申し上げます。
次回の開催は10月17日(水)“海外の社会保障制度を知る”です!
今後とも、この条例が制定できます様、ご協力、応援を頂けましたら幸いです!
引き続きどうぞよろしくお願いします。

NPO法人UPTREE 代表:阿久津 美栄子
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201804/05Thu

Caregivers’ Newsletter No. 6 (Koganei Edition) has been issued!

Caregivers’ Newsletter No. 6 (Koganei Edition) has been issued!

The topic this time is information on“food” that is beneficial to the caregivers in Koganei City.
Newsletter No. 6 highlights two articles on food in caregiving.

First, we introduce to you the “gastrostomy restaurant” hosted by the Nippon Dental University Tama Clinic for Oral Rehabilitation, first ever of its kind in Japan. The Clinic is located in Higashi-cho, Koganei City.
One of the regrets that we hear from caregivers is that they “wanted to let those they cared for eat with their own mouths”. In some cases, gastrostomy was chosen because of the progression of illnesses; in other cases, three meals a day were not fully given to their mouths because of aspiration pneumonia and avoiding risks from oral intake.
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The Nippon Dental University Tama Clinic for Oral Rehabilitation focuses on visiting the nursing facilities and homes for medical care as well as examining oral cancer patients after their operations and looking after children’s eating.
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Dr. Kikutani, the director of the Clinic strives to support “enjoying meal as long as possible”. Under his teaching, the students who are the future dentists engage in practical training in their first and fifth years to experience actual communication by visiting patients at home. In order to make it a model nationwide and even worldwide, he is working passionately on medical education.
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Dr. Kikutani hopes to prepare the ground for local restaurants and cafeterias to be able to offer meals for patients with gastrostomy. He told us that it is most essential for those who are cared and the families who care for them to have the same food “together”.
Starting from Friday, April 13th 2018, “Class for Preparing Easy Nursing Food” will be held monthly to support “eating”.
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The first class titled “Soft Congee (Rice Porridge) and Liquid Intake” is recommended for those who are or will be taking care of their families at home. Did you know that the clear fluid above the congee rice does not have any nutrition? In this class, you will be able to learn how to prepare congee and how to assist with meals as well as obtaining other useful information on these topics.
Linked to the Tama Clinic’s website, there is a web page named “Support Eating: Search Site for Food Forms for Dysphagia Diet and Nursing Diet”.
While the classification named “Japan Dysphagia Diet 2013” may sound slightly professional, it actually introduces the forms and stages of “nursing meals” in an easy to understand way with pictures. The whole website will surely be useful for nursing care at home.

Changing the topic, the second article on nursing food is about “Life Deli Koganei”, a bento (packed lunch) delivery shop that supports your nursing care in total. Life Deli offers delivery of “mousse-style food” that is still rare in these delivery services.
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The shop owner Mr. Miyayashiki is also the representative of Ishidue, a general incorporated association that offers one-stop consultation for welfare service to meet various needs such as taxation, law, pension, real estate, ceremonial occasions and entertainment. He is a trustworthy and valuable person.
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The association name Ishidue has the word “tsue (due)” in it. “Tsue” means a stick. Mr. Miyayashiki wishes to be a strong stick for families who are nursing and put this in the name so as to remember the originating point and the role as a guiding stick. He told us that he founded Ishidue when he felt the inconsistency in the nursing insurance system and wanted to support the families who are caring.
He has been actively assisting employment of those with disabilities. For example, he accompanies a handicapped person to a cleaning job in an apartment and works together. He created this job when he heard from a caregiving family that the parents wanted their child to be able to self-support in the society after they pass away.
Mr. Miyayashiki says, “People with disabilities can handle work carefully and properly. It is just that we figure out good ways for that person to be able to do that job.” He is keen on creating more jobs. He truly is a strong supporter for the caregiving families.

Days In Grief: Feelings for Father
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Having one’s family member restrained to a bed is such an unbearable experience for a caregiver. One of our readers shared her emotional turmoil and the sense of guilt she has long kept within herself.
My father had his legs restrained to a bed in the hospital. From his mouth, which was the only free part of his body, he shouted repeatedly, “Call me a taxi because I’m going home!” Even now, I cannot forget how he pleaded. Every time I remember, tears fall from my eyes. I get angry at myself for not having been able to make his earnest wish come true; at the same time, I get angry at the hospital.
It all began with the fracture of femoral neck when he fell down inside the house. My brother living together with him called me and told that Father was taken to a hospital by ambulance, which was quite far from their house.
Three days later he had an operation and a week later he was supposed to start his rehabilitation. However, he did not eat his meals, and tried to get off from his bed. It must have been his desperate appeal.
Because he would not eat, he ended being put on a drip. He would pull it out, so he was restrained. He was freed from the restraint only when the family was seeing him. It was so miserable to see him being tied again when we had to leave.
After a few days, I told the chief nurse that I wanted to let my father be transferred to another hospital. The chief nurse replied harsh and cold, “That is impossible!” I then consulted the care manager, but got another reply that it was not possible. My father, who did not do any rehabilitation, was transferred from the surgery ward to an internal medicine ward, a place for dementia patients.
I was not sure whether the nurses were on patrol there. Two days later, I received a call that my father was in a critical condition. But no one in the family could make it in time. When we arrived at the hospital, Father had already been moved to the hospital morgue in the basement.
I had so many questions to what the doctor and the nurse explained. I made protest in tears, but it did not reach them. In the large elevator that leads to the morgue, I cried out loud. From that moment, I swore I would never come to this area again.
Father had been a stubborn person from long time ago. When I talk about my father, tears still flow from my eyes. This will never ever change.

True Feelings of Caregivers
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◇l Do you have someone you can consult when you feel your heart is torn? There might be someone who is feeling the same… The one I care for cannot hold notebooks or pencils anymore. I should have talked more. (Lady in her seventies)

◇l You mustn’t strain yourself in the hospital. You’ll be exhausted. You must find a doctor who would think about your entire life for you. (Lady in her seventies)

◇l My father-in-law would often cough with food and vomit. He was warned not to vomit near the other users of the facility. He might have been coughing because he was given food that he didn’t want to eat. When he moved to another facility, he took a test and it was found out that he still have enough ability to swallow. He was no more given nursing food; he even became able to eat a seafood bowl. Preconception is no good. We must have things checked properly. Thanks to all the checking, my father-in-law is still able to have the joy of eating. (Lady in her forties)

◇l Caregiving is solitude. The stubbornness with which you don’t easily rely on someone might enable you to manage caregiving. I was like that. (Lady in her fifties)

◇l I often visited my aunt who was living alone, a patient of Parkinson’s disease. It was worrisome that she lived on the second floor. When she began to have difficulty walking, I urged her to use a “silver car” (walker for an aged person) but she rejected. However, to my surprise, the next time I visited her, she had already decided to purchase a silver car, advised by her care manager. Maybe her pride didn’t let her do so in front of her niece. (Lady in her sixties)

◇l Seeing me tired out in long-distance caregiving, the doctor in charge of my father summoned my brother who was living together with my father and entrusted the decision of future treatment to him. Thanks to the doctor, it became much easier for me. (Lady in her fifties)

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